I know this post is long overdue and sorry for making everyone wait..
- After the last Toronto trip, things were supposed to proceed quickly, but unfortunately they didn't. My case has a new person working on it now. A doctor from Sick Kids Hospital in Toronto who is a neuroblastoma expert. I can't remember his name at the moment??? He looked over my images and believed that the tumor may have been dead!!!!!!! I was scheduled to get an MIBG scan. Because of the rarity of this scan it did not get scheduled until the end of October as they need at least 4 people scheduled to do the scan. What a stressful 2 months that was!!!!!!
Got the results of the scan today. The tumor is not dead :( BUT.... It is less alive then it was originally!!!!!!!! To me that is great news, Even though the chemo and radiation did not shrink it, it did diminish the active cancer cells :) I a not sure where this brings us for next steps, but I am happy that we are going in the right direction.
Now we wait again. Dr. Nicholas will send the results of the scans as well as the images to Toronto and we wait from there. I am planning on enjoying my holidays happily knowing that I am slowly, but surely beating this :)
Hope everyone has great soon to be holidays and I will update when I know more.. Thank you
P.S. The smoking battle has not been won yet.. But I am getting there. Slowly but surely.. It is a hard battle