Closure...no miracles involved

Almost a year from our last post we have to tell you that Priscilla passed away at home last night.

The last 12 months have been so up and down with hopes of the Vitamin infusions giving her some relief from the symptoms and a little extra time, perhaps they did and we're so grateful for all the donations that helped pay for them.

There have been some wonderful times...Kullen's first birthday was an important goal...

Hospice also helped ease the strain on Will and  Pearlz's friend Linda has been by her side throughout this last year...Becky and Michael have the girls.

A huge party in a local park was organised and paid for by the Canadian Children's Services last Summer and a good family photo taken...Priss in a wheelchair by this stage...

Being in the Hospice took it's strain on the family especially the children who missed their Mom terribly so a hospital bed was brought into the home and Priscilla began home nursing/care with daily visits from nurses and carers with Linda there full time too.

Christmas came and went...

but Priscilla's condition began to deteriorate and the pain increased as the tumours continued to grow; no chemo or radiation was suitable so more pain medication was needed.

In May her Dad, Joe, made the trip back to Canada from Australia to spend some last time with her...this proved most cathartic for them both as he was able to clarify some bad memories from her childhood and give her peace of mind. The month passed very quickly...they ate poutine together for one last time and chatted about happier days...

...but so great was her pain that her couldn't hug her.

Through-out this ordeal Priscilla has remained strong, brave, intelligent and loving. Friends and family have visited regularly and cheered her soul and theirs too.

Sharing a giggle with Linda...

This week, a doggie visitor

The world is a much better place for you having been here, you will live on in your precious children and your beloved William will continue to be an amazing Dad to them.
Goodnight, sleep tight Sweetheart, see you in the morning.

Becky's Post

Well it's been a long few weeks since my last update on things. Kids are out of school and keeping us going none stop. So let's start with a good note before going into the not so pleasant update. 

So to start kids are going great Liam had his 4th birthday yesterday we all took him fishing in Ottawa and they spent the night with family. Kyra and Megan are in some fun summer camps and have been enjoying the relaxing time at home playing in the pool and spending lots of time outside being little girls. Mr Kullen well he is such a cutie pie, always has a smile on his face. He was is weighing in at 18 lbs now, amazing how far the little half pint has come. 

Our plans for the summer haven't gone as we had hoped. We did manage to get a little mini get away in, to Montreal. It was Priscilla, myself and our 3 girls. We had a lot of fun, we got to see the biodome and took a horse buggy tour of old Montreal. But it took a big toll on Priscilla. We have been watching her go down hill fast.

 So as you guessed the not so nice part to this update :( but here it goes. Priscilla finished her 20 vitamin c infusions 5 days before we went on our mini vacation. She was tired but pushed through it. The following week she was having a hard time walking and her foot was swelling more then ever. She went to see her doctor and she noticed her decreased ability to do things and the tired look on her face. The doctors plan was to have Priscilla admitted to hospice for a rest. It was suppose to be for one week. Priscilla pain has also gotten out of control even with the increased amount of pain meds its still at a way to high level. With her in hospice they could keep a closer eye on things. Well her week has come and gone and she is still in just as much if not more pain. Her pain has started traveling up into her ribs and arms. The only thing that has changed is the vitamin c infusions in the last 3 weeks This week has been really rough. She wasn't able to get up from bed on her own on Tues. Her legs have both become very weak to the point she can't stand for more then a few seconds. We have watched her struggle with this new problem emotional and mentally. She is having a hard time accepting her limitations. What to do now, well the hope is to get her going on the vitamin c infusions again. We are back to the fundraising in order to get her the infusions again. It is the hardest thing to have to do is sit and watch someone suffer in pain and know there is something that can help but don't have the means to get it for them. We have had a lot of success in the past with help from sharing her story. So again we are asking for your help to share the story and get the fund she will need to do these infusions. We are once again looking at about $1300 per month to do these infusions. The family CAN NOT afford these without help. Thank you for all the help and support till next update god bless everyone.

https://www.gofundme.com/2ayqm38

Thursday 20th July

Health update :

Since infusions stopped and I've been at hospice things have gotten worse. I have extreme pain in my ribs and entire abdomen area, my legs are extremely wobbly to the point where I cannot stand up without assistance and walking is painful and slow with the walker.

Well today I got great news and feel super blessed. I'm not sure yet I can name the contributor but will do so if I get permission but, a contributor (an agency) has agreed to pay for 2 vitamin c infusions per week, indefinitely!!! I feel extremely blessed and pray that these infusions bring me back to feeling better and hopefully my legs start working again too.

Note from Sue, all the money raised by Gofundme and the various events Priss's friends organised has been used up on the Vit C infusions and other medications, the balance at Gofundme still reads at around $3,400 but the account is actually almost empty now.

https://www.gofundme.com/2ayqm38

A Week in The Hospice

Priscilla has been admitted to a hospice for a week's rest and to get her pain and fatigue under control

""So, I checked in to hospice yesterday around 4 pm after my naturopath appt. This place has been truly wonderful so far. Lovely home cooked meals and staff so amazing. 
Discussed my pain with Dr. Leigh this morning, it's a new pain that started about a week ago about middle of my back right on my spine. She had increased my pump at the time and it hasn't helped me. So we are going to try steroids for 3 days to see if that helps. She also wants to call the radiation doctor to see if that can be done. I'm really not keen on the radiation idea as I feel that it actually made me worse the last time but I'm willing to look at my options.

 Also started on antibiotics as I have kidney infection again, and I just got off antibiotics maybe 2 weeks ago.

So at the naturopath appt we discussed a few options. My pain, tiredness and fatigue have seriously increased since the last vitamin c infusions. Ideally, she would like me to continue with at least once a week vitamin c infusion which would be just under 600$ a month cost. My second option is starting the mistletoe injections which is going to cost roughly 250$ per month.

So that is the update.
Thank You again for all your uplifting comments and support. I love you all"

and shortly after she posted that there was another message, so much more uplifting

""This place is simply amazing. These people all have huge amazing hearts. Will and I were supposed to have our date night tonight but Because I am here, it was going to be cancelled but the ladies overheard and made us our own date night here. They started us off with a shrimp cocktail, then supper was cordon bleu chicken, stuffed potatoes and veggies and for dessert a baked pear. So delicious. We are waiting for the bill now lol."""

Mid July 2017

Now that Priscilla's 20 Vitamin C infusions have come to an end she is really struggling with fatigue and stress to the extent that her palliative care doctor has requested a bed for a week at a local respite centre, hopefully this will give her the chance to regain a little strength...her own words...

"So I know I haven't updated you guys in a while and I'm sorry about that. My vitamin C infusions ended on June 27th. That was the 20th infusion. My energy had been really good. Since they have stopped my energy has gone back down and I find myself falling asleep almost every time I stand still. Its really annoying. Also I've been having a lot of anxiety attacks, a lot of stress. Dr. Leigh, My palliative care doctor put me on the waiting list to go to hospice for respite for a bit. I got a bed starting tomorrow for about a week to relax and unwind and de-stress a little bit. I also have an appointment at 230 with Dr. Chelsea Grant my naturopathic doctor, to see the next steps. Will try to update tomorrow once I know more"

At the weekend she and Will had the three younger children baptised...this is my favourite photo of the family...each child has 2-3 god-parents to take care of them in the future...

The family has been enjoying so many outings this summer, they've been fishing, having BBQs, to fairs and even to Montreal for a short stay to visit the Biodome there...Priss is making lots of happy memories for her beautiful family. Will and girls are learning karate and Will has joined a gym and is building up his strength and fitness.

Stay strong Sweetheart...and please keep them all close in your hearts and prayers,

Sue

xxx

Last MRI Results and a Happy Mother's Day

Well the results aren't good at all, the 7 tumours have all grown slightly and Priscilla now has a fracture of her L4 vertebrae...in her own words

"Saw Dr. Leigh this morning. Got update on MRI I had at the beginning of May. There has been a slight increase in size of the tumors and there is now a spinal compression fracture at the original tumor at verterbrae L4. Nothing they can do about it except control my pain. Only option for bone metastases is radiation and I've already had my max. But the good news is that since I started vitamin C infusions I have better pain control and using my pain pump less"

We are delighted of course that the vitamin C infusions are helping even though they are $140 each and 3 times a week...this is where the fund-raising is so important, the infusions would be out of reach without this and the GoFundMe campaign.

Mother's Day was still celebrated in style with a fabulous brunch at home and lots of cards and flowers...

and a yummy chocolate and berry pancake served with love...

Please keep your messages of support coming as they mean so much to Priscilla and Will and help them their spirits up
Love from Sue
xx

First Meeting At Ottawa Integrative Cancer Centre

Hallo every-one, here is Priscilla's account of her first meeting with her naturopath , Dr McDonel...

"Alright so big appointment today at the Ottawa Integrative Cancer Centre. Met with my naturopath Dr. Mcdonel.

 First off, they have not had experience with Neuroblastoma patients so this will all be experimental which has been my experience since Day 1 of this diagnosis so I understand that. 
Now she did say that they will research and the things that they have started me on and will research will not cause any harm but may or may not be beneficial. We discussed my goals today in knowing that I do have a terminal illness and in no way is this expected to be a cure but a way to prolong life and enhance quality of life.

 My two main starting goals were increasing energy and managing pain control. I have another appointment on Monday to see their General Practitioner to get the blood work done to start the Vitamin C infusions. That should start hopefully within the next two weeks. They are going to try to get in contact with the naturopath clinic in Cornwall to see if the Treatments can be given there which will lessen my trips to Ottawa as they do increase my pain as its a long ride for me. I am really hoping that it is a possibility. They are planning approximately 15 (or more depending on the outcome) of the Vitamin C infusions with a review after 3 to 4 treatments. They said I will know by then if the treatments are helping or not and if its worth continuing or not.

 I am also starting Vitamin D3 1000 IU/Day (Prevent deficiency and helps with immune support), Curcumin (powerful anti-inflammatory, helps with pain, lowers inflammation and may have direct anti-cancer actions)), Melatonin (helps with side effects including pain, appetite, energy and sleep quality. It is also an anti-oxidant which helps support immune function and has anti-cancer actions.) and Probiotics (Helps to heal the digestive tract, anti-inflammatory, good for immune system). These supplements are to be added to my daily medication list and I am to continue my current pain regiment of dilaudid, lyrica and cannabis oil.
There are other things to be added later on as needed but i am positive this is a good start. Also looking into Mistletoe injections which are an at home injection, I have some paperwork to look over for it and a little bit of research to do on it myself and cost to look into it. I will be getting an email with cost breakdown for all of these as well soon. Bought the supplements I needed to start today and will be integrating them. Also she was very happy with my current nutrition plan that we have in place.Thank you Shanna Marie Lynn for your help with that this weekend :) I also got a referral for 2 free sessions of yoga therapy. 

All in all I am content with these first steps."

As you know these treatments are expensive and must be paid for up front so Priscilla's friends and family are arranging many fund-raising activities to help cover the on-going costs~each Vit C infusion is $165CA so we are so grateful for all the donations and all the hard work of Team Pearlz.

Donations can also be made through her GoFundMe page 

Meanwhile Kullen keeps getting cuter...

Liam is enjoying the Spring weather and getting outdoors once more...

Meggie wait for Daddy to tuck her into bed

and Kyra expresses her sorrow in a letter...Mommy I wish you didn't have cancer and I love you...

staying strong together...

Love from Sue

Last Day of Radiation

a photo and words from Will

Well her last day of radiation so now no more chemo no more radiation just check ups until the sand runs out. Its in Gods hands now~does he call another angel home? Well time will tell.
Priscilla wants to thank everyone for the support, the words of encouragement are something to look forward to and for myself i just want to say thanks.
Also without the kids we have and all of our friends who knows what would have happened. It's been a 6 year battle but she's not ready to give up just yet.
So thanks for everything it means alot,
Will

March 2017

So much water under the bridge since we last posted!

We have welcomed Kullen into our family ...he was 6 weeks early but soon caught up and went home to meet his sisters and brother...

He was so very tiny but is thriving, growing so quickly and he has the whole family wrapped around his sweet little pinky finger!

new clothes for Easter...

Kullen has quickly reached all his milestones but Priscilla's health continues to give much concern. Chemo was started just a few weeks after Kullen's birth and continued for many weeks, Priss lost her hair again, was hospitalised several times with kidney infections that have necessitated a tube being put in to drain one kidney and again with a very low white blood cell count. The chemo has had no impact and there are now 7 tumours in all attached to her spine and making walking etc very difficult. So the specialists have decided there is to be no more chemotherapy, they will finish off the current 5 days of radiation per week and then take an MRI picture 6 weeks from now to see if it has any impact.

Their plan now is to 'keep her comfortable and try to improve quality of Life'.

Priscilla and her friends have other plans and have begun a campaign to raise funds for Vitamin C infusions, essential oil treatments and they are looking into juices that may be beneficial.
They are planning activities and sales, raffles etc and have set up a GoFundMe page for donations.

GoFundMe for Priscilla

Keeping up her spirits is a big part of helping her and the way people have quickly offered their help has been amazing. If you like to write or send her a card I will give you her address, she keeps all the cards and letters in an album that she regularly reads through if she's feeling down.

We'd like to thank especially Becky and Michael who have the girls in their home for at least 4 nights per week which takes a huge weight off Priss and Will's shoulders; Becky and Meghan care for Kullen when Priscilla has her treatments.

Thank you for reading this, it's very difficult to write about but if it will help our daughter in some way then it is worth it.

Will update again when we have more news.
Sue xx

A Robbery

The day after I wrote the last post Priscilla's quiet little town had as many as 50 cars and vehicles broken into, hers included.

The thieves stole over $300 of items such as cash, gift cards and her medications after she left her purse in there...she had taken all three children for a long bike ride and a play in the local splash pools before bed and when she got home she had so much to carry in and sort out that she forgot to go back out for the purse. Needless to say she is shocked and feels violated by this and also worried that they will come back.

Intra-venous anti-biotics were supposed to have been started for her kidney infection but that got mixed up and instead of home care nurses coming out to her she was told to be at the hospital at 7.30am the following day to have the drip started.

I just wish I could wrap her up in a gentle hug and make it all better but that will never be the case so instead we chat and stay close that way~~~please keep them all in your hearts.

Happier/healthier times 10 years ago at her aunt and uncle's house

Let's hope this coming week goes better

Sue

How Things Are Now

So much has happened since our last update...Priscilla has again beaten all the odds and expert opinions to conceive another baby boy, due December 9th.
However the original tumour has started to grow, it's blocked her left kidney and necessitated a tube to be inserted to drain it to an external bag. It's been very painful and becomes infected very easily so she's on strong pain medications as well as anti-biotics now.
A second tumour has developed next to her left ovary and that is a serious cause for concern. Her oncologist plans to start chemo in the third trimester and deliver the baby as early as possible via caesarian section.

These are Priscilla's words

"'Saw my OBGYN today and although I haven't been gaining weight baby is growing very well. He is measuring at 23 weeks and I'm 21 weeks. I thought I was 20 but apparently i lost a week somewhere according to him lol. Blood pressure was normal and no longer a worry. I was sure my blood pressure was high because I was in more pain than usual. See him again on a month. Last week I saw dr. Nicholas and hes concerned by the weight loss because it may mean the tumor is growing. Hoping it's not. I have an MRI at the end of August and an appointment with a dietitian over the phone tomorrow to try to find ways to increase my intake. Problem is with the baby growing and the tumor there my stomach has shrank as it has no room and my appetite is non existent (unless it's Riverside pizza haha but not so much affordable to eat every day ). I see dr. Nicholas again on the 9th of August again for a quick follow up. The infection in my nephrostomy seems to be coming back a bit again too so may have to head back to emerge earlier for more antibiotics. I have about 2 days left of the original prescription. I wish there was an easier solution to that problem. Although the tube has relieved an immense amount of pain I now have pain in other areas and extreme exhaustion from fighting the infection. It seems like a lose lose but trying to keep my head up. Thank you everyone for your support."'

Counselling is helping keep her head above a water these days as she also lost her beloved father-in-law last month but caring for a busy young family certainly takes your mind of things for a lot of the time

Summer rolls on and they are all enjoying lots of outdoor time...

 Even when it's raining they don't want to come inside...

Liam turned 3 and thoroughly enjoyed his birthday party in the garden with his family and friends...

So that's where we're at today, wishing and hoping for the very best for Priss and Will and all their loved ones, please continue to keep them in your thoughts and prayers,

Love from Sue

No News Has Been Good News

After waiting many, many weeks to hear from the Toronto team about the radical radiation treatment they'd suggested Priscilla's Dr Nicholas has decided the following...

"

Dr. Nicholas and I both agreed that the MIBG radiation therapy would be too risky since they wouldn't know what dose is safe for an adult as it hasn't been done to anyone over 40 lbs. at this point we also agreed that leaving Toronto out of the equation was probably the best bet as they haven't done anything for me nor have they ever followed through with any of their action plans. So for now we will just do scans every 3 months an keep it at that. I'm content with that. It doesn't mean I'm in remission but it means it's currently under control and to me at this point that's the best news I could get.

 — feeling content. "

Special birthday brunch for a special lady...

Priscilla and Will and the children are loving their new home, the girls have settled happily into their new school and Liam is walking now. The first Thanksgiving dinner has been enjoyed by a large group...here's what Priscilla cooked...
"
Getting ready for thanksgiving dinner, meat pies and Turkey in the oven, ham in the crockpot, potatoes, sweet potatoes and corn on the stove. Desserts were made Thursday, pumpkin tarts, blueberry pie, peanut butter fudge and chocolate mint cookies. Just have to get the hors d'oeuvres in the oven soon and waiting for people to come. Happy thanksgiving everyone, I'm thankful mostly for my family

Liam doesn't look too sure about this pumpkin...I think he'll enjoy the 'candies' at Halloween lol

Well and truly Autumn, the family and special friends went to a farm nearby and chose a pumpkin each.The children played in a huge barn and enjoyed a tractor ride ...

Not Tarzan's Jane but our Kyra!

Thank you Mel for the great photos :)

We'd like to thank all our readers who have given Priscilla such support during the early days which were especially dark...we had no idea where she was headed or that we would welcome Liam into our family during this awful time. Much love and gratitude to you all.

Sue
xxxxx

Update

Hi everyone,

Sorry I haven't updated in a while, but I haven't heard anything either. Finally, being fed up of waiting, I started to consistently call Dr. Nicholas's office and finally heard back from him this afternoon. Apparently, he forgot about me because he never heard anything from Toronto and Toronto forgot about me completely. So Toronto took my file to the rounds meeting this morning. A rounds meeting is where all the oncologists sit together and discuss their patients with all the doctors (especially special cases like mine where they aren't sure what to do). So they discussed me at the rounds meeting today and all the surgeons agreed that I would be worse off after surgery at this point because at this point the tumor is still attached to the spinal cord and some nerves. They need the tumor to be smaller to feel comfortable with surgery.

So this is what they decided on, bear with me because it's hard to explain. They didn't give me the name of the procedure, but I will explain it as Dr. Nicholas explained it to me.
There is a special scan for neuroblastoma patients called an MIBG scan. Before the scan, I get a special radioactive injection (the initials of the chemicals are MIBG). Anyway, the chemicals are attracted to the neuroblastoma cells and light them up for the scan. This procedure which is new to Canada and ony available in Toronto (not Ottawa) is the same kind of chemical but stronger and is given through IV. It's supposed to attack the cancer cells and hopefully drink the tumor. (Wouldn't that be lovely). Therefore, I have to go to Toronto twice this summer. First time is one day for an assessment to make sure I qualify, which I obviously will but the doctors also want to see me in person and explain the procedure better. Second trip, I will get the iv infusion an then have to stay in the hospital for 5 days as I will be highly radioactive and am not allowed out in the general public. I will be in a special room with a special X-ray wall so that visitors won't get radiation from me. It will be hard for me because I hate being away from my family, especially the kids and it will be boring because I can't even go outside for walks etc etc. I will post more when I know more and when the appointments are booked.

In other news, Liam's starting to perk up from his pneumonia and we are moving to Cornwall on July 5th to a beautiful one floor bungalow house with a big yard.  It will be a new and fresh (well-needed) start.

Thanks everyone
Priscilla.

Elizabeth had some fun in the mean-time

An Update

Sue here and I am so sorry to have let this blog go so long without updating it.

Priscilla endured a long and debilitating round of chemo before Christmas but it failed to shrink the tumour at all. After waiting many weeks for her team to decide their next actions she finally has appointments booked next week for MRI and ct scans and something else that I can't remember, for one scan Priss must lie perfectly still on her (sore) for 2 hours :(

In the meantime we've been seeing some lovely photos of the family, Kyra has turned 5 years of age.

This is what Priscilla was told at the recent parent-teacher interview...

""Had parent teacher interview today for Kyra. Her teacher had nothing but great things to say about Kyra. In 5 months he has progressed so much and is doing extremely well with her French. She is very polite and lovable and well-mannered. Apparently she has 2 little boys fighting for her love. I was told that the 2 little boy got into a fight over her and she told them to stop fighting because they could both be her boyfriends lol. They start too young. I'm gonna have problems with that girl when she is a teenager. The only complaint that the teacher had about Kyra was that when it is time to get dressed to go outside or go home, she is slow to get ready because she is too busy talking, so now she has a special corner alone so she can get ready""

There has been very heavy snow recently in Ottawa and the family has been out to the Winterlude festivals twice this month...

Megan looks so cute here...

and Liam just keeps growing..."Wait! I've got something to tell you."

"Oh never mind, it will keep"

2 sleepyheads...

and last but not least, the scene from the front door last weekend...

Just adding a note from Priscilla regarding her scans etc Fingers crossed for better results xxx

"All my scans are booked . Have my MIBG scan booked from feb 25-27th. My MRI is booked for the 26th after my MIBG scan and my CT scan is booked for March 6th. I see Dr. Nicholas on the 10th of March. Hopefully Toronto will have had a chance to review most of the scans and let me know what the next step is."

Round 2

Hi everyone,
Sorry for the late post.. My second round of chemo was delayed by a week due to the fact that I got a double ear infection and was basically bedridden for 2 weeks. It finally cleared up but I was feeling a little bit low still but decided to push on and get it done.  The faster I do it the faster it's over is my thought process.. My blood counts were also in the unsafe range to do chemo that week. The second round went as smoothly as it could as go.. Saw Dr. Nicholas on the 15th of October and we also decided that we would do Neupogen injections again this round.. They help your body create white blood cells (necessary to fight infection) that the chemo is destroying. I forgot the joint and muscle pain that was associated with the injections but I am staying positive that they will help me stay out of infection range and keep me at home with my babies instead of hospitalized. Chemotherapy ran every day from the 16th of October to the 20th.

The post-chemo scans are starting to be scheduled slowly. Toronto want a CT scan, an MRI and an MIBG scan. The CT Scan is scheduled for Nov 21st, the MRI for November 27th and the MIBG is pending scheduling because they need a 24 hour urine test done before which I will do sometime this week. The MIBG is the longest of the scans as you have to go in multiple days.. Day 1 you get some sort of radio-active injection which you need to get special meds to help counteract the affects of it as well. Day 2 and 3 and sometimes 4 are 2 hour scans.

I have been hooked up to home hydration since Saturday and it seems to be helping as I go out almost every night for a short walk with the girls.. Most of the time I don't really want to go, but the girls really enjoy the walk and beg for it. My blood pressure has been running very low and the hydration helps to stabilize it to an acceptable number. It was at it's lowest Friday morning hitting an all time low for me of 79/38. I could barely sit up with out getting dizzy let alone stand up so I spent most of that day in bed. I have 3 more days left of hydration and then hoping my body will recover on its own from then.

Next doctors visit is November 4th with Chemo running for Nov 6th-Nov 10th pending blood counts are safe for next round.

Thank you everyone for keeping me in your thoughts and prayers.. Hugs and love to you all..

P.S. the 2 year anniversary mark of diagnosis is fast approaching (Nov 24th) :( I was hoping last year at this date that I could say I was cancer-free, but other things were planned for me and now I have a beautiful son to show for it.

First round of chemo

Went in every day last week for chemo. Came home and slept every day. Really feeling exhausted but trying to focus on the positive. I'm doing this so my kids have me around longer :). It's tough on me to hear them cry for mommy when I'm upstairs sleeping away, but I know that sleep means healing. Hooked up to home hydration so I can keep up what little energy I have. I try to make it downstairs for a bit of cuddle time. It's easier with Kyra in school. I get about half an hour of cuddle time with Megan before her nap and then rest again. I get up for Kyra's bus and spend half an hour with her before Megan wakes from her nap. Try to hang out for supper and back to bed. Liam gets me here and there for feedings and naps with me :)

Week 2 of each round is when I am most susceptible to colds and flus and infections. Any of those, will land me in the hospital. Happened twice last time,so I try to get the girls to understand the importance of hand washing. Especially with Kyra being in school. I do not want to catch an infection and land in hospital for a minimum of 4 days, getting blood transfusions and antibiotics and being depressed and sad and crying and away from my babies. 

My neighbours and hubby have been very helpful. Bring the girls out for a run around the block after supper and bringing snacks and meals for me and the girls. They are wonderful people. God bless them. They understand I need all the rest I can get and are always telling me not to worry and ushering me back to sleep. Day 7 to 14 of each round is supposed to be when the chemo is killing all those bad cells... Unfortunately killing the good with it but those know to reproduce and should be back up to normal levels by Day 21. That's when I start the next round again. Scheduled for October 7-12th. Please bear with me if I don't post. I do try to do updates on Facebook as well so feel free to add me on Facebook if you do not have me on there :). 

Thank you for your continued support and comments. They really make my day :). 

Love and blessings to all

Priscilla. 

Resting with Liam

Mommy's big helper

Mommy's banana eating monkey

2013 Family Picture <3 all my loves.